Sunday, April 19, 2015

A Voice for ALS

Those of you who have been following my blog
know that my mother passed 2 years ago from ALS.
One of her biggest frustrations was that she lost her
ability to speak clearly and be understood.  Imagine
not being able to communicate with your family, friends,
and medical staff.  My mom would have told you she loved
to talk!  So to not be able to converse and communicate 
needs, on top of not being able to move....well,
it paints a sad picture.

I would like for those of you who feel comfortable doing so
to follow this link and add your voice to prompt Senator Wyden to 
pass the Steve Gleason bill. This vital legislation would help preserve 
Medicare coverage for speech generating devices (SGDs).  
SGDs are critical to the lives of people living with 
ALS (Lou Gehrig’s disease) who have lost the ability to speak.
It will take you less than a minute and possibly give
someone with this terrible illness the gift of a voice.

Please leave a comment to let me know that you have supported
this important legislation.  Thank you!

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